Young People With Chronic Fatigue Go Undiagnosed: Researcher

Bernie Tafoya
January 23, 2020 - 5:35 pm
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(WBBM NEWSRADIO) -- Most cases of Chronic Fatigue Syndrome in young people go undiagnosed, leaving the patients to suffer, according to a study by a DePaul University researcher.

Dr. Leonard Jason said CFS is more than just feeling tired -- it’s debilitating and has many different symptoms.

“We’re talking about feeling fatigue, feeling sick, feeling cognitive problems, having difficulty standing up, having difficulty sleep(ing), so it’s much beyond just a fatigue,” he tells WBBM Newsradio.

The DePaul University community psychologist screened more than 10,000 young people over the phone in the Chicago area. He said 165 who exhibited symptoms then had medical and psychiatric exams at Lurie Children’s Hospital, and 42 were diagnosed with chronic fatigue syndrome. Only two of them had previously been diagnosed.

“Among the people we identified, the vast majority of them, 95%, had never been diagnosed.”

Jason believes one reason the condition goes undiagnosed is that primary care doctors don’t spend enough time with patients, on average, to see it.

He adds people tend to make wrong assumptions about young people with chronic fatigue syndrome:

“Oh, gee, this is just a bunch of kids who are lazy, they don’t want to go to school (or) there’s something wrong, might be a psychiatric problem.”

More funding is needed to identify and treat chronic fatigue syndrome in young people, he said.

The study is published in the journal Child & Youth Care Forum.